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54 pages 1 hour read

Judith Heumann, Kristen Joiner

Being Heumann

Nonfiction | Autobiography / Memoir | Adult | Published in 2020

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Key Figures

Judith Heumann

Judith Heumann is a lifelong political activist for disability rights in the United States and around the world. Judith was born in Brooklyn, New York and contracted polio when she was 18 months old. She has paralysis from the waist down as a result. She uses a wheelchair but has never let her disability hold her back. She considers her disability the reason she has had a rich life filled with community, achievement, and learning all there is to know.

As a child, Judith was aware of her disability but not of how it limited her or how the world viewed her. This began to change when her mother took her to kindergarten, and she was rejected from entering. Doubt was reinforced when Judith was eight and a boy asked her if she is sick, and Judith realized that the world views her as unable to fend for herself. These experiences, along with being discriminated against when she attempted to get her teaching license, inspired her to become an activist.

Judith inherits her persistence—she describes herself as “calmly unstoppable” (128)—and rejection of the status quo from her parents and from growing up during the Civil Rights Movement. She has never wished to not have a disability, and having one has taught her about herself and the world. She states:

I’ve had to learn to push through my insecurities. I’ve learned I’m stronger in a group. I know having my disability has given me opportunities I wouldn’t have had if I hadn’t had it. If I’d simply been a girl growing up in Brooklyn, I wouldn’t have been exposed to the same things. I know it pushed me to study harder, work harder, and achieve harder. To travel. I know it pushed me to fight. TO change how others saw us—our human potential (202).

In short, she urges her readers in Seeing Disability Differently.

When Judith attended Health Conservation 21 and a camp for children with disabilities, she began to discover The Power of Unity in Effecting Change. In university, Judith worked on student council while in a body cast after a spinal fusion, showing her persistence at a young age. After so many experiences of discrimination, it was refreshing and comforting to find people to whom she could relate and who understood what she had been through. It is through this sense of community in organizations like the CIL and DIA that she finds the strength to effect change.

Judith cofounded many NGOs and initiatives related to disability rights, including the DIA, the CIL, the WID, and IDEA. She co-led the occupation of the San Francisco Capitol and protests to force the signing of the Rehabilitation Act. She has also worked for several administrations to fine-tune and implement policies and has traveled the globe to learn about how people with disabilities are treated and viewed in other cultures. Judith was almost always offered these influential positions, as people saw her contributions as useful, and her knowledge and experience were invaluable to them. In citing The Effects of Discrimination and the Long Road to Equality, Judith believes that the fight is never over, as rights can always be taken away and improvements can always be made.

Ilse and Werner Heumann

Ilse and Werner Heumann are Judith’s parents. Both Ilse and Werner left Germany as teenagers in the late 1930s as Hitler was gaining power. Ilse and Werner’s history shapes who they are and leads them to develop values of perseverance, action rather than silence, and acceptance of differences. When Judith contracted polio and developed quadriplegia, her doctor recommended that she be placed in a hospital. Judith’s parents outright refused this option, lacking trust in institutions, especially those who ask for their children. Judith reflects on how her life would have differed if she had been born in Nazi Germany instead, where children were taken from their homes and killed for having a disability.

Judith describes her mother as the “embodiment of persistence” (8) because Ilse worked tirelessly for years with the Board of Education and other parents to make education a reality for Judith and other children like her. She finally achieved success when Judith was nine years old, but the placement was a special program for children with disabilities that did not challenge Judith. By the time Judith was in high school, she was finally able to attend regular classes. Judith’s father, Werner, worked long hours as a butcher to provide for his family. Within Judith’s memoir, Werner shines brightest when Judith graduated high school with an award and the principal insisted that she accept it from the ground floor. Werner demanded that Judith be allowed on stage, and when Judith felt embarrassed and wanted to leave, he reminded her to never back down. Judith takes her parents’ values with her throughout her entire life and career as she affects change in the world for people with disabilities.

Ed Roberts

Ed Roberts was a lifelong disability rights activist who cofounded a vast array of non-governmental organizations to implement policies, support people with disabilities, and strategize ways to get governments and media to listen. After Ed contracted polio at age 14, he acquired a disability that changed his life, and it motivated him to effect change. Ed was the first person in a wheelchair to attend UC Berkeley and created the Rolling Quads, an association of students with disabilities. He cofounded the Physically Disabled Students Program at UC Berkeley and the Center for Independent Living, which sparked a nationwide movement geared toward autonomy for people with disabilities. He also cofounded the World Institute on Disability. Ed was also instrumental in the 1977 protests that forced the signing of the Rehabilitation Act. He helped orchestrate the protests alongside Judith and Kitty and performed a moving speech about his experiences.

Kitty Cone

Kitty Cone worked for the Center for Independent Living alongside Judith and Ed Roberts in the 1970s. Kitty was diagnosed with muscular dystrophy at age 15 and uses a wheelchair. Kitty was instrumental in orchestrating the occupation of the San Francisco Federal Building in 1977 to pressure Califano to sign the Rehabilitation Act in its original form. When years passed and the bill was still unsigned, Kitty and Judith cofounded the Committee to Save 504. Like Judith, Kitty is a vivacious go-getter who does not back down under pressure. She and Judith act as a power duo during the protests, rallying supporters, gaining media attention, and encouraging people to persevere. During the protests, Kitty gives a speech to the protestors in which she demands that HEW sign the Rehabilitation Act. The protest is ultimately successful, largely due to Kitty’s efforts.

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